Current list of LGMD trials per Treat NMD | SRPT Message Board Posts


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Msg  14500 of 14680  at  1/24/2023 7:28:11 PM  by

schmiggins

The following message was updated on 1/24/2023 7:32:48 PM.

 In response to msg 14496 by  pineappleguava
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Re: Current list of LGMD trials per Treat NMD

Active, not recruiting

Gene Delivery Clinical Trial of SRP-9003 (Bidridistrogene Xeboparvovec) for Participants With Limb-Girdle Muscular Dystrophy, Type 2E (LGMD2E) (Beta-Sarcoglycan Deficiency)
Limb-Girdle Muscular Dystrophy, Type 2E
Genetic: SRP-9003
Locations:
Nationwide Children's Hospital
Columbus, Ohio, United States

https://clinicaltrials.gov/ct2/results?cond=LGMD&Search=Apply&recrs=d&age_v=&gndr=&type=&rslt=

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I do remember Doug saying they were going to use the clinical level drug that remains to dose more kids than originally planned, as it will only bolster our case, and why let that left over drug go to waste. So Kim got it right .... in his cryptic way.

And - unless those additional kids have already been dosed, the clinical trials site (as Red noted) is often late updating things like that. So, it may still be recruiting.


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