Twitterer: LGMD2D | SRPT Message Board Posts

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Msg  14061 of 14098  at  1/31/2020 11:21:56 AM  by

pineappleguava


 In response to msg 14060 by  schmiggins
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Re: Twitterer: LGMD2D

I think someone is confusing dates on the trial you mentioned.  Maybe its me, but I think the date of 3/14/19 is in reference to the trial that was started in Feb. 2015 and completed March 14, 2019. [That update was made in July, 2019] 
 
If you recall I posted some twitter comments about gene therapy biopsies from the recent gene therapy summit in San Diego.  I strongly recommend following the twitter ID oligogirl for current info.
 
One of the cofounders of Myonexus is Brian Barber.  He is also the president of LGMD2d Foundation.  His son, Max Barber was in the trial and dosed in August, 2015 according to a GoFundMe page.   
 
 
This is a link to clinical trials from the LGMD2D Foundation page
 
 
 
 


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Msg # Subject Author Recs Date Posted
14063 Re: Twitterer: LGMD2D schmiggins 0 1/31/2020 2:46:16 PM






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