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New post on NTM360Arikayce plus three other drugs. “ TS I have been treated for MAC for several years. 18 months at a time. Last 18 month meds were Azith 250 mg, rifampin 600 mg, clofazimine 100mg and Arikace nebulized every day. MAC has currently no new growth for me. New scans coming up in October 2020. Be careful with Ethambutol. It can have bad sensory side effects. I had to get off it due to vision loss. Also had fatigue, lost weight. Feeling poorly during the meds was usual, but to wanting to get rid of the MAC kept me going. It is very difficult to get rid of. Check with your Dr. about Clofazimine. It is highly regulated by the CDC, but I think it work well for me this time. No alcohol. Hope you feel better. Hang in there. Terry” https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Activity-Feed/?lastItem=6404 |
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