Liz Allan
John Whyte FDA emphasized "importance of story telling" to help regulators consider patient perspective when making decisions NORD2014
Christy Collins
Whyte: a lot of data is not black and white, it's grey. Stories and anecdotes can help here, but think abt how to back up w/ data
Alan Thomas
"_chrisco: Can be intimidating for patient reps but the reps learn their value with experience. Just being in the room has value #NORD2014"
Stephanie Fischer
Klein of US_FDA: Currently have 201 Patient Representatives representing 120 diseases
Christy Collins
Shoutout to Duchenne moms for educating FDA on condition. "Amazing women" -John Whyte FDA #NORD2014 says don't apologize for your advocacy
Stephanie Fischer
Whyte of US_FDA: seeking input on disease states for Patient-Focused Drug Devlpmnt mtgs to be held in 2017